Today Jonah was flown to Children's Hospital of Central California. He got a bit stressed on the ride down and at one point forgot to breathe but recovered. Since he arrived I've been told he has been doing fine. Shane is down with Jonah this weekend and I stayed behind in Los Angeles with Noah. I plan to leave Sunday afternoon and hope that Noah will follow Monday. I am praying that they will work quickly to get Noah down to Madera to join his brother as being separated is difficult. Jonah will be having his surgery soon, I assume next week so I want to be down for that.

Today was a bit of a difficult day, between saying goodbye to Jonah for a few days to hearing news from the doctors here in Los Angeles regarding Noah's respiratory status. They are thinking he may need a tracheostomy in order to go home. This will be a lot of management for us as he will come home on a ventilator system that we will have to monitor at all times. It was depressing news but it isn't final. Noah still has another chance maybe two at being extubated to see how he does off the ventilator. We are praying fervently that he will not come home to us with a tracheostomy but in the same breath if this is what he requires to come home than we will have to manage. The doctors also mentioned that some children keep their tracheostomys for as long as two to three years until they have grown strong enough to breath without it. I hope we are not faced with this trial.

Please keep both the boys in your prayers. I hope Jonah comes home to us the end of March and I pray that Noah will follow soon thereafter.

As I will be going down to Fresno soon I won't have internet access like I do here in Los Angeles. I have to go over to the hospital library and they block the blog so Shane will have to update it for me. Hopefully I will be able to work out uploading photos of the boys too.

Thanks again for your support,

Shane and Michelle

I wish you not a path devoid of clouds
Nor a life on a bed of roses
Not that you might never need regret
Nor that you should never feel pain
No, that is not my wish for you

My wish for you is:
That you might be brave in time of trials
When others place crosses on your shoulders
When mountains must be climbed and chasms must be crossed
When hope can scarce shine through
That every gift God gave you may grow along with you
And let you give the gift of joy to all who care for you

Irish Blessing-

My former boss from back east, Sam Kemp, sent this beautiful Irish blessing to me. I was so touched by the thought that I wanted to share it with you on our blog. We are still here in Los Angeles. It has been a hectic situation trying to get beds for the boys back in Madera. They had one bed earlier this week but we didn't want them transferred separately so we were waiting for a second bed to open and today they gave the only bed they had away. So now we are at square one and waiting for space. It looks like we will have to send them separately after all. Jonah will most likely go first as he needs surgery and then I hope and pray Noah will follow within a week. I absolutely hate having them apart as I have already gone through this once before for two weeks back in October but it looks like at this point it is our only option. Please keep praying for our babies and for their progress. Jonah is doing fairly well and practicing every day bottle feeding a few cc's. It is slow progress but with time he will get it down. Our sweet Noah is still struggling respiratory wise and I fear that Jonah will beat Noah home and Noah will still remain hospitalized for a couple of months after Jonah comes home to us. I hope and pray Noah will not require a tracheostomy and home ventilator but if they are not able to wean him from the ventilator his only hope for coming home will be to have one.

Thanks for all your love and support. See the adorable photos and videos of the boys below.

Love, Shane and Michelle

Below are photos of our sweet Noah as well as a video above. He has really filled out and looks like a healthy, chubby baby. We just need to get him off the ventilator and on a less high maintenance breathing system so he can tackle bottle feeding and come home. He is still a few ounces over six pounds.

Adorable photos of Jonah! I love the photos of Shane playing faces with Jonah and I thought you would enjoy the first real bath in a tub that Shane gave Jonah today. We are one surgery away as well as hopefully learning successfully to bottle feed before Jonah is ready to come home. We are still waiting for beds to open up in Madera but we hope early this next week both will be transferred.

I had to share this photo of me holding the boys together. One of the nurses went through quite a bit to get the two together and I'm not sure I'll be so lucky to hold them like this again until we get Noah off the ventilator. It was a sweet experience!

Notice what's missing in the photo and video clip below? Yes, the best news in a long time came today for Jonah. He is completely breathing on his own without any oxygen assistance. I had to take some pictures to share. Possibly by the end of the week we will be back down in Madera at Children's of Central California. Jonah will most likely have his last surgery (at least for now) next week.

Fear not, I am with thee, O be not dismayed,
For I am thy God and will still give thee aid;
I’ll strengthen and help thee, and cause thee to stand
Upheld by My righteous, omnipotent hand.

I included the above words from the hymn, How Firm a Foundation because I had a sweet experience on Monday. I was having a difficult day and feeling rather saddened when suddenly the above words came to my mind and I found myself humming the tune of this hymn. At first I didn't realize the profound meaning of the words but it hit me very suddenly that God was thinking of me in that moment and letting me know through music that He loved me and would not abandon me. It is good to be reminded of His love for me as some days are very difficult and getting up to face another day can be quite an act of courage.

Below is a sweet video of Noah. He has really struggled the past couple of weeks and it has been hard to find good moments to take photos or video clips so I was happy today when he was calm and happy enough for me to shoot a few seconds of him stretching his little legs and arms out. He is such a sweet, beautiful baby and everyone always says how adorable he is. Jonah is a sweet little thing himself and wins over the hearts of many.

I am happy to report that we will soon transfer back to Madera. The current problem is Children's of Central California has no available beds so until things change we will continue to be here in Los Angeles. However, this does prove frustrating while we wait here without an idea of which day they will go.

I will continue to update you as soon as we have more information to share. Thank you everyone for your love and prayers.

Shane and Michelle

I thought everyone would enjoy the below photos. I had to also include the two video clips of Jonah. The one of him sucking on his pacifier is so cute, he also cries a little bit so you can hear his voice for the first time. Tonight they tried him out in a swing and he seemed to enjoy it so that was fun to watch.

Both boys are still here in Los Angeles but within the next week or two they will be transferred back to Children's Hospital of Central California in Madera. We are ready for the move as Jonah really needs his final surgery to put together his intestines and remove the ostomy. He will gain weight better when this happens.

We are grateful to the surgeons here at the LA hospital but we are more fond of the Madera hospital so we are excited to return.

Jonah did nipple a couple of times this past week but it was hard work and both times his heart rate dipped but nonetheless the occupational therapist felt strongly that he has the coordination and ability to bottle feed he will just need time to build the strength.

Noah has really been struggling with coming off his sedation medications. They stopped Morphine for the first time this week and it has been rough going the past few days as he adjusts to not having sedation on board. He is having a hard time learning how to calm himself down. They do give sedation when he gets to the point that he cannot be consoled but they are trying hard to get him off all sedation as obviously it is better for his growth and progress.

I am happy to say that Noah's ventilator settings are lowering and we hope and pray with time that he will be able to successfully come off the ventilator. Jonah is on very minimal oxygen settings and if he continues to improve he may not require oxygen at all when he finally goes home.

My guess is that Jonah will come home the end of March as he still must go through one more surgery and then recover as well as tackle bottle feeding (that can take time!) I hope Noah will come home to us no later then April.

Jonah now weighs nearly 6 pounds and Noah is 6 pounds 4 ounces. Jonah is filling out finally and has cute, chubby baby cheeks. He is catching up to his brother.

Thank you all for your continued support and prayers. We are so grateful for each of you and for all your constant efforts to let us know you are thinking of us.

Love, Shane and Michellee