Monday, February 4, 2008

I thought everyone would enjoy the below photos. I had to also include the two video clips of Jonah. The one of him sucking on his pacifier is so cute, he also cries a little bit so you can hear his voice for the first time. Tonight they tried him out in a swing and he seemed to enjoy it so that was fun to watch.

Both boys are still here in Los Angeles but within the next week or two they will be transferred back to Children's Hospital of Central California in Madera. We are ready for the move as Jonah really needs his final surgery to put together his intestines and remove the ostomy. He will gain weight better when this happens.

We are grateful to the surgeons here at the LA hospital but we are more fond of the Madera hospital so we are excited to return.

Jonah did nipple a couple of times this past week but it was hard work and both times his heart rate dipped but nonetheless the occupational therapist felt strongly that he has the coordination and ability to bottle feed he will just need time to build the strength.

Noah has really been struggling with coming off his sedation medications. They stopped Morphine for the first time this week and it has been rough going the past few days as he adjusts to not having sedation on board. He is having a hard time learning how to calm himself down. They do give sedation when he gets to the point that he cannot be consoled but they are trying hard to get him off all sedation as obviously it is better for his growth and progress.

I am happy to say that Noah's ventilator settings are lowering and we hope and pray with time that he will be able to successfully come off the ventilator. Jonah is on very minimal oxygen settings and if he continues to improve he may not require oxygen at all when he finally goes home.

My guess is that Jonah will come home the end of March as he still must go through one more surgery and then recover as well as tackle bottle feeding (that can take time!) I hope Noah will come home to us no later then April.

Jonah now weighs nearly 6 pounds and Noah is 6 pounds 4 ounces. Jonah is filling out finally and has cute, chubby baby cheeks. He is catching up to his brother.

Thank you all for your continued support and prayers. We are so grateful for each of you and for all your constant efforts to let us know you are thinking of us.

Love, Shane and Michellee

1 comment:

heidi said...

i love the video of him sucking on his pacifier, so sweet how he holds his hand up there. they are getting so big, 6 lbs thats so great