Finally.
We have an answer for Noah. We went to Madera today for a study that looked at Noah's GI system and how efficiently it is digesting food. The technician confirmed that Noah suffers from gastrointestinal delayed emptying. She said that over 1.5 hours they consider normal digestion of food to be around 65%....Noah only digested 25% of the three ounces he ate.
Unbelievable. I wish they would have taken his reflux more seriously sooner and ordered this exam back in August when I was complaining about his constant issues with solids and vomiting but finally we have an answer.
I am supposed to wait and hear from the clinic this next Tuesday. Options are either medication or worst case scenario surgery but I assume that they will be conservative and try medication first. At least that is our prayer.
Jonah had us scared he was coming down with something Thursday. I had to cancel their flue shots for the third time. He had two nasty diapers in the morning and was coughing up a lot of flem. The rest of his day was fairly stable and he ran no fever so I think he might have a slight cold plus a lot of yucky teething (his top two teeth are getting ready to come in).
That is the latest in the Hanna house.
1 comment:
Sorry to hear about the DGE....Hallie has that, too. We were pretty frightened about some of the meds. We ended up trying them all...bethanacol did not work; erythromycin made her sick and didn't work and who wants their kid on antibiotics full time, anyway, given all the drug-resistance this might create down the road; and finally we ended up on Reglan. We were very worried about that, but it does seem to work. As do large quantities of prunes, to which Hallie is fortunately not allergic. But I would definitely advise treating this medically and not surgically. My gut feeling (so to speak) about the surgeries for reflux (mostly fundoplication) is that it can mask the underlying cause and not solve any of the problems. The question is why can't he digest food properly, and I wish more doctors would zero in on this and try to help us figure it out and not just treat the symptoms. Anyway, I found that this is where mommy sleuthwork really helped and amazingly enough, once we figured out what really was bugging Hallie, we've got this darned thing under control. Good luck to you on this one...this can be a maddening ride (funny how they never let us know how much the post-NICU journey is also a rollercoaster). But you guys are doing great...
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