Thursday, September 3, 2009

I finally uploaded photos from my trip to Washington, D.C. I included photos of the Washington Monument, Capitol, view of Alexandria from the Masonic Temple, the Masonic temple built by George Washington (includes the stain glass window and me standing in front of the Knights of Templar flag), my missionary companion Lillion Clawson-Hoyt and I at Serendipity in New York City, me holding my fabulous knock-off Dolce & Gabanna bag while eating at Serendipity, my dearest friend and cousin, Bonnie and I at Serendipity, Amy (Valerie's friend), Valerie (my sister), me and Bonnie eating at the wonderful Serendipity (best frozen hot chocolate EVER), Bonnie and I in front of Mt. Vernon in Alexandria, the King Street Trolley which runs near Gadsby's Tavern, Bonnie, Amy and I in front of Gadsby's Tavern (famous restaurant where George Washington used to eat during his presidency), the town hall of Alexandra and Bonnie and I in front of the Statue of Liberty.

It was a wonderful trip and I look forward to maybe visiting again next summer to see Valerie and the D.C. area.

Back at home, things are moving along this week. We have been very busy. Monday we took Noah to the Pulmonologist. The specialist was so excited to see Noah off oxygen and after listening to him thought we should try to start weaning him at night too. We also plan to eventually take him off his last diuretic (Diuril) which would put Noah down to a whopping three medications when he used to be taking a minimum of eight (not including his Nebulizer medications). We are making progress!! We have tried Noah off oxygen at night and he does ok for about half the night but then sats in the low 90's so we've put him on 1/8 Liter and that seems to be enough to get him back up where he should be. In a matter of no time we will be off oxygen all together. I can hardly believe I am even typing those words.

Jonah is continuing to meet his goals and little by little getting stronger. I really think these classes twice a week will really help him progress too as they will focus on gross motor development and have every kind of adaptive equipment in the classroom. We start the classes next week. Hurrah! It will also be good for Noah to socialize and start learning some concepts that will prepare him for preschool and eventually kindergarten.

Grandma Hanna has been a huge help the past couple of weeks. We are so glad to have her here. She has been able to witness some huge milestones with Noah. He officially started walking, trying different foods (we have added grapes and diced peaches to his repertoire this week...he still is not big in to cheese or meat of any kind but we are going to try hot dogs with cheese in the middle and see if he will try them).

It is hard for me to believe it is September! Soon it will be October and Grandpa Langston will be back for a visit. We look forward to seeing him soon.

I hope to convince Shane to go to the beach this weekend for Labor Day but I do believe it will depend on whether or not he is able to actually get away from the office Monday.

Stay tuned for more adventures.

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