Sunday, January 31, 2010

It has been a bit since my last update so I wanted to let everyone know what has been happening in the Hanna house.

Jonah continues to wear his heart monitor. There have been no episodes (of course, somehow I knew this would be the case). Both boys are finally over another round of colds but are doing much better. Jonah's eating is still up and down. We had several awful days last week but he turned around toward the end of the week. I do think the Periactin is helping some. Shane helps in the morning getting the boys fed, etc. while I am in the shower and he forgot a couple of days to give Jonah his Periactin. He ate just terrible the days that he did not get the Periactin so I do think the medication is helping.

Noah's allergies are bothering him and consequently his eating has also been awful. I am at my ropes' end with all that has been going on with his up and down eating woes. I so worry that he is 27 months and only 23 pounds. He has a lot of catching up to do. So, after much thinking Shane and I agreed to meet with another surgeon in Madera regarding the pyloroplasty. This procedure has been suggested by the GI Clinic for some time now but when we met with Dr.Tamura regarding Jonah's fundoplication, he said he is not an advocate of the procedure so that stopped us from pursuing the surgery with Noah. But since that time they repeated Noah's gastric emptying delay study and it was even worse then it was several months ago, which means that even with him being mobile and able to get around he is NOT doing better with getting food moved through his system. I plan to really ask a lot of good questions Tuesday, including what the likelihood of seeing better eating habits/appetite out of Noah will be if we do go through with the surgery. I hate to put Noah through surgery, he has not seen anything in way of surgeries since the NICU (believe it or not) and only been hospitalized twice since coming home two years ago (which is amazing for a micro preemie). So we will really have to pray about this procedure but I am looking forward to the appointment and getting more information from this surgeon.

We also have other possibilities that we are pursuing right now as a family. I really wish I could elaborate but everything is so preliminary right now that all I can say is keep us in your prayers and that the Lord will guide us in making decisions in the next couple of weeks.

Shane and I stay busy (of course). I am still working with the 14/15 year olds in our young womens group at church. I love every minute of it. They are such sweet, righteous young women who try very hard to make good choices every day. It is a tough world to be in and they happen to be in an area where they are very much a religious minority so they have a lot of people questioning their beliefs but they are strong in their convictions and an example to me. I have learned a lot from them. Plus, what a fun age to teach! They are so full of energy and all the wonderful possibilities that are yet to come...it is such an exciting time in their lives. Shane is still working as the director of activities although he has been told they plan to release him (it is a big calling with a lot of stress attached to it). Jonah and Noah seem to be doing well in nursery. Noah is struggling with sitting through the first hour of church and we are working on what it means to be "reverent" instead of throwing tantrums the entire hour we are in our Sacrament meeting. *Sigh* Let's say it is an ongoing process.

We miss Grandpa and Grandma Langston and Hanna too. We were lucky to have both sets of grandparents down for the holidays and January. It was so much fun having them here and enjoying their company. It seems a bit more quiet with everyone gone now.

I can hardly believe tomorrow is February. Before we know it, Valentine's Day will be here!

Thank you everyone for continuing to follow our boys. Keep an extra prayer in your heart for us this week. We have a lot of things happening this week and decision to make so having the knowledge that we have others thinking and praying for us will really help.

Stay tuned. Hugs for now.

1 comment:

LISA said...

Michelle, Michelle, my dear friend I think I am going to have to get my own Facebook so I can keep better connected with ya! Maybe Kristen will let me use hers tonight! Just called Shane to check on Noah, but as much as he tried to sound ok I could tell he wasn't . The spirit has been bugging me all day to call you.I could hear the worry in his voice. What can we do for ya? So sorry the journey is rough at the moment. Please know you are in our prayers. Hang in there! Man where is that sunshine I ordered for ya?