Lately I feel like I am rushed in my postings but at least I am finding time to post!
The swallow studies on Thursday went well. Both boys are not having any issue with swallowing. Jonah does reflux a bit in to his nose but nothing serious. They actually asked if Jonah brings any formula up through his nose when taking his bottle and I said no but when he vomits he brings things up through his nose. Speaking of which, Jonah did NOT take well to the Barium. He had two huge throw ups while at our High Risk clinic. Of course both came up through his nose and he freaked out and started holding his breath and choking. I've unfortunately been through this enough to know what to do so I laid him quickly down on his side, suctioned his nose and spoke to him calmly to get him to settle down until the episode had passed. The nurses in the room where a bit taken back by the intensity of Jonah's throw up but in the end we had it handled and they later mentioned they were impressed with how well I handled the situation. I know it was meant well but in actuality I would rather not have to deal with this at all. It terrifies me every time that Jonah won't come out of it and I'll end up doing CPR like I almost had to do this past April when Jonah stopped breathing for several minutes after a nasty vomit. Thank goodness we have not been through that again since then.
The High Risk clinic was exactly what I expected. Noah is pretty much on track with his adjusted mile stones. He is crawling backward a few steps at a time and pulling himself forward, he is so close to crawling and starting to pulling himself up on things. We are almost there! To no surprise Jonah has delays, no surprise there but we continue onward with daily therapy to combat all his challenges.
Tuesday we have Jonah's MRI. I am a bit anxious about this and thank goodness Shane is taking the day off to come be with us as I don't know if the neurosurgeon will start speaking of Cerebral Palsy to us after the MRI. Poor Jonah, he will have to be sedated and then we head straight down to the Neurosurgery clinic to meet with his specialist. I also plan to speak to his eye specialist later this week to see what she sees in the MRI. I would like to know what is going on in the Occipital Lobe of the brain to know if Jonah's lack of vision is more serious then we know. Answers would be welcome, as difficult as they would be.
We are moving along with projects in our new home. We are finishing off replacing the tile counter tops in the kitchen and started putting up curtains tonight. We managed to get up Christmas lights outside and thank goodness I got our tree up early as we have been so busy with everything I'm not sure how I would have done it the past couple of weeks.
Thank you all for your love, support and prayers. We wish you a Merry Christmas in this holiday season.
1 comment:
You are so amazing to me! You have had a tough year and are still able to smile! Thanks for inviting me to your blog. I am honored to read such a wonderful story of a loving family with two miracles from above. Hang in there, its so worth it!
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