Friday, December 19, 2008

Sunday, December 14, 2008

Lately I feel like I am rushed in my postings but at least I am finding time to post!

The swallow studies on Thursday went well. Both boys are not having any issue with swallowing. Jonah does reflux a bit in to his nose but nothing serious. They actually asked if Jonah brings any formula up through his nose when taking his bottle and I said no but when he vomits he brings things up through his nose. Speaking of which, Jonah did NOT take well to the Barium. He had two huge throw ups while at our High Risk clinic. Of course both came up through his nose and he freaked out and started holding his breath and choking. I've unfortunately been through this enough to know what to do so I laid him quickly down on his side, suctioned his nose and spoke to him calmly to get him to settle down until the episode had passed. The nurses in the room where a bit taken back by the intensity of Jonah's throw up but in the end we had it handled and they later mentioned they were impressed with how well I handled the situation. I know it was meant well but in actuality I would rather not have to deal with this at all. It terrifies me every time that Jonah won't come out of it and I'll end up doing CPR like I almost had to do this past April when Jonah stopped breathing for several minutes after a nasty vomit. Thank goodness we have not been through that again since then.

The High Risk clinic was exactly what I expected. Noah is pretty much on track with his adjusted mile stones. He is crawling backward a few steps at a time and pulling himself forward, he is so close to crawling and starting to pulling himself up on things. We are almost there! To no surprise Jonah has delays, no surprise there but we continue onward with daily therapy to combat all his challenges.

Tuesday we have Jonah's MRI. I am a bit anxious about this and thank goodness Shane is taking the day off to come be with us as I don't know if the neurosurgeon will start speaking of Cerebral Palsy to us after the MRI. Poor Jonah, he will have to be sedated and then we head straight down to the Neurosurgery clinic to meet with his specialist. I also plan to speak to his eye specialist later this week to see what she sees in the MRI. I would like to know what is going on in the Occipital Lobe of the brain to know if Jonah's lack of vision is more serious then we know. Answers would be welcome, as difficult as they would be.

We are moving along with projects in our new home. We are finishing off replacing the tile counter tops in the kitchen and started putting up curtains tonight. We managed to get up Christmas lights outside and thank goodness I got our tree up early as we have been so busy with everything I'm not sure how I would have done it the past couple of weeks.

Thank you all for your love, support and prayers. We wish you a Merry Christmas in this holiday season.

Tuesday, December 9, 2008

Santa's helpers could not be cuter! I love these Christmas pajamas we bought for the boys.

Tomorrow we go to Fresno for a swallow study for Noah. Thursday we have the same study for Jonah and then both boys go to the High Risk Clinic. Next week we have Jonah's MRI and visit with his neurosurgeon. I am a bit anxious as I don't know what to expect from the MRI but I will make sure and post the results.

Wish us luck, I tried so hard to get both boys on the same day but was unsuccessful. So we have three trips to Fresno this month. Thank goodness Grandpa Langston is in town and helping. Noah is starting to be so demanding as he is getting more and more active. Things are just getting started when it comes to craziness in the Hanna house!






Monday, December 1, 2008

Just a quick posting. It was such a busy week last week that I am exhausted today! I included photos from our last place of the boys playing together, including a good one of Jonah in his Bumbo seat and Noah in his crawling stance (we are almost there). Jonah is steadily improving on his head control and his therapists feel he will continue to make progress. He is a happy little boy, aside from teething. =)

We had a wonderful Thanksgiving holiday and a gift exchange and putting up of the tree party with Shane's parents as they will be in Pennsylvania this year and my folks are coming down from Utah. Noah got a fun pony from Grandma and Grandpa Hanna and Jonah got a few light up toys to play with including a new activity center.

We are officially in our new home, there is still a lot to do but we are grateful to be finally moved in.

We hope your holiday was wonderful and wish you all a Merry Christmas!








Tuesday, November 18, 2008

Just a quick posting. We have been running around crazy getting things prepared to move in to our new home this Saturday. The tile on the first floor is done, it looks beautiful. We chose a Spanish style tile for the first floor and we will be carpeting the second floor Thursday. The painting will be done just in the nick of time and Friday we are having someone come clean and spray for bugs/pest control.

We have been taking things over all week. Our new table will be delivered Friday but we are waiting on a few other pieces of furniture but at least we'll have the table for Thanksgiving!

Thanks to all those helping.

The boys are growing and growing. Jonah has adorable rolls everywhere and weighed in at over 18 pounds last week. Noah is a bit over 17 pounds and still long and lean. Jonah has been teething (his top two and bottom two are in and now both of his incisor teeth are coming in up top) and he has been a bit cranky the past two nights plus he has been vomiting a bit more then usual. Noah's vocabulary now includes, Ma ma ma, Da da da, Na na na and Bbbbb. He is such a a chatter box and so much fun.

When the dust settles this weekend we'll post photos and updates on the boys. Noah goes to Fresno Thursday to meet with the GI Clinic about what their plans are for his upcoming studies and the delayed emptying issue.

Saturday, November 8, 2008

Noah's upper GI test did not show anything. While that is good it is also frustrating as we still have no answers as to why he is vomiting so much. We have an appointment Wednesday with the GI Clinic and a swallow study scheduled for Jonah before the clinic. It will be interesting to see what they have to say this week and if they plan to try medication for Noah's delayed emptying issue.

We have been blessed to have my cousins Bonnie and Carrie out to help with the boys. Carrie gave us a break Thursday to go shopping and Friday watched Jonah as Bonnie and I took Noah down to Fresno for his test.

Noah has started saying "Da da da da"!!! How exciting. He is a chatter box and just this morning started finally saying "Da da da da." Shane was so excited.

Jonah is also making progress and giggles and chatters at us more and more each day.

Also, it is probably time that we announce.....we are MOVING! The home is in a wonderful neighborhood and is near all the good schools of Bakersfield. It is coming with a lot of work but we got such a good deal on it that we figured we can spend a little more fixing it up and in the end we are very lucky and blessed. I do have to say the projects keep extending and the painting that was supposed to take a week has turned in to over two weeks as we decided to completely take out a wall downstairs and open the front room and kitchen. We are doing half of the labor on our own to save expenses but boy can it be frustrating. I keep hoping we make it in before Thanksgiving!

So that is what's new in the Hanna home.

Monday, November 3, 2008

Cute photos of the boys. Noah is growing up right before our eyes. When it comes to feeding he has to do everything himself, that includes taking the spoon and attempting to get the food in his mouth. It isn't as productive if I were doing it but he will eat so much more if I scoop up the food and give him the spoon to feed himself. If he is at all stubborn with his bottle he insists on holding his cup and drinking from it. All good things but boy is our little man independent and unwilling to do things any way but his. I hope this isn't indicative of what the teenage years may hold! We may have our hands full!

Cute photos of Jonah after bath time (the red marks on his forehead are from his helmet not fitting right, we have been through three adjustments in the past two weeks with this silly helmet...finally it is fitting him right and not leaving welts after he wears it for a long period of time).

The last two photos are so sweet of the boys playing together, I liked the one of Noah getting a hold of Jonah's hair! He has taken to grabbing people's hair lately. I hope the boys have a special relationship as they get older. Even now if Jonah is laughing I will look over at Noah and he is laughing too just by watching his brother smile.






Noah has an upper GI test this Friday. The GI Clinic called last week to confirm he has the delayed emptying issue and they want to do a series of tests to see if there are any strictures or other related issues. The vomiting continues, some days better then others. Today was not one of our better days. I have to say I never thought I would be worn so thin as a mother. I can put Noah down for two seconds and that is all it takes for him to get upset and throw up puddles of puke. Today alone we had three such episodes. By the end of the day I had it with being thrown up on. I sure hope this Friday we can find some answers.

I am in an honest mood tonight. The past few months have been some of the most difficult that I have ever experienced. It seems that certain emotions have been magnified, such as anger, fear, discouragement, guilt, shame, and sometimes also hope. Some days I think to myself that I can't possibly make it through yet another day. Some days I think about the ironic nature to the saying, "God doesn't give you more then you can handle," when I feel that I am hanging on by my nails from a cliff praying that I don't slip and fall. Some days I have moments of clarity and I remember that although challenging these boys have missions and will fulfill their various tasks that God has set forth for them.

I am so grateful to all those during these past few months who have stepped forward and been there for me during some very dark, dark hours. You know who you are and I will never be able to repay you. The one thing that I hope for is that once clarity really comes...when true acceptance becomes an almost daily attribute of my life that I will be able to find others who are in similar positions needing the same understanding hand to hold on to. That is my hope.

Tonight, as I have said before, I was feeling so frustrated with the state of things. I know that many of my thoughts are selfish as I think, why me? But many of my thoughts also include the difficult emotion of, why my boys? Why do they have to suffer so? I was reminded of the account of Alma the younger speaking to his son Helaman about his many years as a missionary and the blessings that came despite his tribulations:

Alma 26: 25-27

“Yea, and now behold, O my son, the Lord doth give me exceedingly great joy in the fruit of my labors;

For because of the word which he has imparted unto me, behold, many have been born of God, and have tasted as I have tasted, and have seen eye to eye as I have seen; therefore they do know of these things of which I have spoken, as I do know; and the knowledge which I have is of God.

And I have been supported under trials and troubles of every kind, yea, and in all manner of afflictions; yea, God has delivered me from prison, and from bonds, and from death; yea, and I do put my trust in him, and he will still deliver me.”

That is great courage and great appreciation for the healing power and saving grace of our Heavenly Father. I was grateful for the reminder tonight that as many prophets of old, both from the Bible and Book of Mormon, God does deliver those who remain faithful. He grants courage, he grants peace, he gives protection and a place to lay down your burdens. I will admit I have had several days where my burdens have felt so great, so heavy, that I have felt overwhelmed in knowing how to manage everything but I have been given the support in these moments, either by phone calls, someone stopping by, family members giving a kind word of encouragement or taking the boys so I can get rest or a break, all of these things have carried me onward.

Thank you each of you who have supported me. I hope to live and learn from this experience and to master my emotions so that I can in turn service others experiencing similar trials and tribulations. What a blessing in my life this would be.

Friday, October 31, 2008

We had a wonderful dinner at our friend's house tonight. Our friend Brooke, who has a great gift with creativity, put together a beautiful Halloween spread for us. We had a scary spider cake for dessert and watched the Haunted House with Eddie Murphy.

What a fun night! The boys behaved themselves quite well too. We took lots of fun pictures of Allie in her pretty lady bug costume and the boys in their frog costumes.

Happy Halloween!




I absolutely love this video of Jonah. Today one of the sisters from my church came by to help. She has wonderful experience in child development and brought fun toys for the boys. Jonah just loved the puppet!

Monday, October 27, 2008

More cute photos of the boys in their Halloween outfits! Top photos are Jonah and the bottom photos are Noah.






Friday, October 24, 2008

Finally.

We have an answer for Noah. We went to Madera today for a study that looked at Noah's GI system and how efficiently it is digesting food. The technician confirmed that Noah suffers from gastrointestinal delayed emptying. She said that over 1.5 hours they consider normal digestion of food to be around 65%....Noah only digested 25% of the three ounces he ate.

Unbelievable. I wish they would have taken his reflux more seriously sooner and ordered this exam back in August when I was complaining about his constant issues with solids and vomiting but finally we have an answer.

I am supposed to wait and hear from the clinic this next Tuesday. Options are either medication or worst case scenario surgery but I assume that they will be conservative and try medication first. At least that is our prayer.

Jonah had us scared he was coming down with something Thursday. I had to cancel their flue shots for the third time. He had two nasty diapers in the morning and was coughing up a lot of flem. The rest of his day was fairly stable and he ran no fever so I think he might have a slight cold plus a lot of yucky teething (his top two teeth are getting ready to come in).

That is the latest in the Hanna house.